Been A Little While

I haven't said much about what has been going on with me but today is just not a good day. I really hate the changes because it seems as if I cannot find a common ground. I remember the days of being okay and now it feels like they are so far away. I know I can't bring them back but I want to feel some type of normalcy in my life.

The best I could imagine right is just not feeling like my body is holding onto everything it can. Smh. I will resist the urge to scream and beat my head against the wall but even that has become difficult. One step and one day at a time.

Long Day

Well I can't complain today wasn't too bad. I did have moments where my stomach bothered me and my GERD started acting up but overall the day was pretty good. I really need to work on finding a nutritionist that knows a little something about what is happening to me. The lack of information or knowledge is astounding. I know that in time more information will become available but it makes it difficult to find someone who is familiar with PSC. 

One day at a time is all I can do and work to find the right individuals to help with my medical needs so that I can maintain my health in this journey of mine. 

Not Such a Good Day

Today wasn't a very good day. I was nauseous all day. That is one of the worse feelings in the world right now. It is actually worse than me getting a headache. The other side of things is when constipation hits hard. Everything seems to have a domino effect on my body.

I am trying to plan out a few things to get myself on a regimen that might but it is so hard having a schedule that is totally haywire. I need to sit down and learn how to really plan things better. It feels like I am short on time during the week so I want to think about planning my meals on the weekend for the week. Of course this means doing extra work but I really think that it will help during the week.

Tomorrow is a new day. The goal is to try to keep making it work and not give up. 

My TOTD:
Life is always in motion but are you in motion with it or lagging behind trying to play catch up.

My Diagnosis

I had surgery three years ago to have my gallbladder removed. During that time I had many problems before they even performed the surgery. After having the procedure done, I thought everything was good until I ended up right back in the hospital. 

The whole thing had been a scary process for me because I had never been in the hospital until I had my children. Well after running several tests, the MRIs showed I had scar tissue on my liver. Of course that was a cause for concern so I was sent to have a biopsy done. A very painful experience that forever remains embedded in my memory. Review of the biopsy showed I have what is known as PSC, primary sclerosing cholangitis.

What does this mean? I am still learning about it. I know that I have strictures in my bile ducts. The bile fluid that runs into my stomach to help digest my food is not always good. 

At first I was in denial, I didn't want to believe this was happening to me. Well life has a way of making you see it differently and facing your problems. 

Fast forward, I have a number of digestive issues. Sometimes I am scared to eat because I am never sure how my body may react to it. I am trying to work on my eating habits and lose some weight to help but there are days that are so bad that I am not sure that it will make a difference. 

I haven't found any local support groups but the few online groups I have come across have been helpful. One day and one prayer at a time.