Well I can't complain today wasn't too bad. I did have moments where my stomach bothered me and my GERD started acting up but overall the day was pretty good. I really need to work on finding a nutritionist that knows a little something about what is happening to me. The lack of information or knowledge is astounding. I know that in time more information will become available but it makes it difficult to find someone who is familiar with PSC.
One day at a time is all I can do and work to find the right individuals to help with my medical needs so that I can maintain my health in this journey of mine.
Friday, August 30, 2013
Tuesday, August 27, 2013
Not Such a Good Day
Today wasn't a very good day. I was nauseous all day. That is one of the worse feelings in the world right now. It is actually worse than me getting a headache. The other side of things is when constipation hits hard. Everything seems to have a domino effect on my body.
I am trying to plan out a few things to get myself on a regimen that might but it is so hard having a schedule that is totally haywire. I need to sit down and learn how to really plan things better. It feels like I am short on time during the week so I want to think about planning my meals on the weekend for the week. Of course this means doing extra work but I really think that it will help during the week.
Tomorrow is a new day. The goal is to try to keep making it work and not give up.
My TOTD:
Life is always in motion but are you in motion with it or lagging behind trying to play catch up.
I am trying to plan out a few things to get myself on a regimen that might but it is so hard having a schedule that is totally haywire. I need to sit down and learn how to really plan things better. It feels like I am short on time during the week so I want to think about planning my meals on the weekend for the week. Of course this means doing extra work but I really think that it will help during the week.
Tomorrow is a new day. The goal is to try to keep making it work and not give up.
My TOTD:
Life is always in motion but are you in motion with it or lagging behind trying to play catch up.
Saturday, August 24, 2013
My Diagnosis
I had surgery three years ago to have my gallbladder removed. During that time I had many problems before they even performed the surgery. After having the procedure done, I thought everything was good until I ended up right back in the hospital.
The whole thing had been a scary process for me because I had never been in the hospital until I had my children. Well after running several tests, the MRIs showed I had scar tissue on my liver. Of course that was a cause for concern so I was sent to have a biopsy done. A very painful experience that forever remains embedded in my memory. Review of the biopsy showed I have what is known as PSC, primary sclerosing cholangitis.
What does this mean? I am still learning about it. I know that I have strictures in my bile ducts. The bile fluid that runs into my stomach to help digest my food is not always good.
At first I was in denial, I didn't want to believe this was happening to me. Well life has a way of making you see it differently and facing your problems.
Fast forward, I have a number of digestive issues. Sometimes I am scared to eat because I am never sure how my body may react to it. I am trying to work on my eating habits and lose some weight to help but there are days that are so bad that I am not sure that it will make a difference.
I haven't found any local support groups but the few online groups I have come across have been helpful. One day and one prayer at a time.
The whole thing had been a scary process for me because I had never been in the hospital until I had my children. Well after running several tests, the MRIs showed I had scar tissue on my liver. Of course that was a cause for concern so I was sent to have a biopsy done. A very painful experience that forever remains embedded in my memory. Review of the biopsy showed I have what is known as PSC, primary sclerosing cholangitis.
What does this mean? I am still learning about it. I know that I have strictures in my bile ducts. The bile fluid that runs into my stomach to help digest my food is not always good.
At first I was in denial, I didn't want to believe this was happening to me. Well life has a way of making you see it differently and facing your problems.
Fast forward, I have a number of digestive issues. Sometimes I am scared to eat because I am never sure how my body may react to it. I am trying to work on my eating habits and lose some weight to help but there are days that are so bad that I am not sure that it will make a difference.
I haven't found any local support groups but the few online groups I have come across have been helpful. One day and one prayer at a time.
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