Support Website

I have found another support website for people like me living with PSC and also for family and friends who support people like me. http://www.livingwithpsc.org/ is a site that has forum discussions as well as blog postings for PSC'ers and their support system.

I have some difficulty using the PSC support group on Yahoo and I think that is because it is a forum I am not used to. They also have a group on face book but I haven't really said much in there. I was looking to see if there were any support groups locally but the closest group is in Mt Sinai, NY. I don't think I will be travelling that far.

I wish that I could meet with people and talk face to face about some of the issues that we all face. My mother would also like to meet with others to get more information. The nurse in her kicked in because she had never heard of PSC before I was diagnosed.

I don't know maybe I can come up with some ideas on how to get people living in my area together. I just know that this is one battle that I would not want to face alone.

I will try and pull some information together and post it. I know I started this blog and I really didn't get into detail about what PSC really is so I need to correct that oversight.

Feeling Pretty Good

Today I am feeling pretty good. I did another walk from my daughter's school to my house and it was invigorating. I know given time my walks will become a regular routine. Normally I am ready for a nap around 10 am but today I am still up and running. That feels good as well.

Fatigue can be a bit much sometimes especially when there are things I would like to be doing but have trouble focusing on because my body feels worn out. I look forward to having more days like this and maybe accomplishing a few things in the process.

I want to focus on writing more as well as studying for this exam. I will have to learn out to map out my schedule and make it happen. I know that it can be done in spite of what I feel like on most days.

Walking

I started to get back into walking. Talk about muscles hurting everywhere. It is a good thing though. I needed to be more active and since I have been having other problems I thought walking would help with some of my digestive issues. Yesterday I did almost 2 miles and it felt good to say that I made it. I am looking forward to finding other ways to help get my weight under control and maybe ease some of the problems I have with PSC.

Now it is my understanding that exercise will help with some of the fatigue symptoms I feel. I am not sure if that is the case but one can only try to make things better. I wished it would help with my insomnia. It is irritating to have both fatigue and insomnia. I am asking myself how does that happen, but my body has been on it's own little ride for the past year. I am just trying to find a focus for it.